Sunday, February 14, 2010

Sorry again...I just can't keep up, I know it's been a long time since my last entry.  Anyway, my scans didn't come out too well, so I'm on a new chemo.  I do this chemo for 2 cycles a
& then they scan me again.  I'm crossing my fingers!

My business on the other hand is off to a good start.  I was able to reach a thousand dollars in sales in less than a month.  Thanks everyone for all the support!  I hope you love your systems as much as I do!  If you have any questions about the product, do not hesitate to reach me.  I am available anytime.

Well, that's about it for now.  I will try to be more on top of things & write at least every other week.  Thanks for reading.

Friday, January 22, 2010

The Waiting Game


I had my ct/bone scan about three days ago & have not received the results yet.  I thought I might be a little more anxious, but surprisingly I have come to think that no news is good news.  And anyway, I just dropped off my cd of scans from the mainland today - so that they could make comparisons.  Any news now would be irrelevant...so, I sit here & wait patiently.

Those of you who know me well, know that I can't work & that I was "let go" with disability benefits.  Well, it's been a little over 6 months since I left my job & not only am I bored, but some extra income wouldn't hurt.  So, after doing some research, looking at companies like Avon or Mary Kay, & getting some feed back from my family, I've decided to go into a candle business called Scentsy. 

 Scentsy uses a warmer, wax, & a lightbulb to safely bring wonderful fragrance into your home.  I found out about Scentsy when I went shopping at a craft fair.  I bought the kit & was immediately hooked on the product. The amount of smell that came from such a small amount of wax was impressive.  One large warmer can make a three bedroom, one bath home smell absolutely wonderful.  In fact, I use my warmer everyday.  And, it is better than regular candles that has a flame - the warmer uses a lightbulb to safely melt the wax, so ideally you could use it 24/7 & not have to worry about starting a fire.  If you are interested in learning more, please leave me a message at my email - hawngrl@hotmail.com.

Well, that's about it for now.  I will blog again when I get my results from the doctor.  Oh yah, & before I forget...my blood counts have been low again, so my doctor took me off Xeloda until my next chemotherapy on the 28th.  More details later.  Ciao!

Monday, January 18, 2010

Still angry...


I was doing something the other day...I can't seem to think of what it is that I was exactly doing (thanks chemo brain) but, I just remember being full of anger & that's when I realized that I am still a little angry.  I say a little because I can control & recognize it immediately.  I know it's not healthy to be angry...trust me, I'm not letting the anger control me, but I still am.

My blood counts are still low.  Tomorrow I go for a blood test, ct scan (yummy barium drink), & bone scan.  Although I am not looking forward to drinking the barium, I am rather glad to be completing all my scans at one time.  The blood test is to check my white cell count.  If it's still low, the doctor will have me take a Neupogen shot.  I'm hoping & praying that my counts are great...I don't want to have to take a break from chemo.  If that happens, I'm asking the doctor to consult my doctor in Texas before any decision is made.

Anyway, will let you all know the outcome of my scans.  Until then, thank you for reading & praying for me.



Monday, January 11, 2010

Just another day in paradise...


It's Monday morning & I've got absolutely nothing to do...no doctor's appointments, no errands to run, no nothing.  It's a free day all to myself & I don't know what to do with it.  I surfed the web, checked my email, farmed on facebook...gee, I guess I could curl up in bed & watch some tv or I could jump on the treadmill & do 20 minutes of cardio while watching tv.  Anyway, I'm just thankful that I've got some free time to myself.

Did I tell you that my daughter started school?  And, that she loves it?  I chose (not my husband-he has different views & opinions) to send her to a private school rather than a public one.  With all these budget cuts & furlough Fridays, I don't feel completely confident in our public school system.  Yes, private school can be costly, but I figure if I invest in her now, the rewards will be greater later on.  Hopefully, if she decides to go to college, scholarships will be available to her. 

Well, I can't think of anything else to write...until next time...

Saturday, January 9, 2010

Hyper, not sleepy...


From my last entry, my chemo was delayed...once for shingles & a second time for a fingernail infection.  Also, my viral load for my hepatitis b is slightly detectable, so they are changing my medication.  I pray for no more delays in my chemo schedule.  For some reason having that stuff running thru my veins makes me feel safe.  Weird I know, but very true.

I just had my first chemo of the new year, & instead of it making me sleepy, the next day I was very hyper & full of energy.  So much that I managed to clean the house, did a load of laundry, cooked lunch & dinner, & washed a lot of dishes.  I'm wondering if it's the steroids that they give me?  I'm also very, very thirsty & my taste buds are slowly changing for the worse.  For about 10 - 15 fifteen days I lose my taste, everything taste like cardboard.  But, something also very weird happens, for some reason the sweet & the salty are intensified, so much that it ruins anything that I'm so used to eating.

Anyway, I hope you all had a great holiday season.  Santa was very generous to Kanoe this year & got her everything she wanted & then some. She is enjoying everything especially the Hello Kitty bike & V Tech camera.  It's neat looking at the pictures she takes, it's like the view of the world thru her eyes.  She is in school now & loving every minute of it.  I'm glad we were able to get her into preschool even though she missed almost 3 months from us being in Texas.

Well, that's about it for now.  I'll try to blog more often.  Sorry for the delays.  In the meantime, take care & God Bless!

Sunday, December 27, 2009

Up & coming....

So, this week I get another round of chemo...number 6 to be exact.  The doctor will be running tests after the new year to ensure everything is running smoothly as planned.  I'm hoping that it is almost all gone.

My dear grandma (my dad's mother) has passed & has gone to meet our maker.  I'm hoping she'll put in a good word for me to stay on this Earth a little longer.  God only knows how much I want to see my mini me grow up & graduate from college & get married & have more mini mes.  That would be awesome!

I guess since I've had so much chemo, it takes me much longer to "bounce back."  This last time I was "down"for about 2-3 days, my taste buds came back after day 15 rather then day 10, I was more tired, more swollen especially my legs & feet, my feet & hands tingle & are purple in color.  I am still bald, the hair has chosen to not grow back in between chemos & I don't have any eyebrows.  I miss my hair & my eyebrows the most.  I could have my eyebrows tattooed on, but I don't want to go through the pain, it's not worth it.

My Christmas was great!  I am so blessed.  I am very thankful for my family & all the love & support they show me daily.  Well, I hope your Christmas was great & that your New Year is even better.  I'll blog again later.

Wednesday, December 23, 2009

What else is there???

Hi, and so sorry you all had to wait a long time for another entry to my blog. Things have been good...just trying to enjoy the season since I no longer have to work it.  :-)

My last chemo that I received on the 8th of December was actually at the Queens Canter Center & it was great!  I was actually treated like a "queen." There was a tv, a recliner chair, and they provided me with a lunch.  Again, it was great & the staff was great also.  I am never going back to receive chemo at the doctor's office.  No way jose!

So, because of my chemo, my blood counts were low.  I received 3 neupogen injections & a procrit injection, & then I developed a rash which turned out to be shingles!  So, now I'm on antibiotics...really, what else is there?

I know, it could be worse.  At least the shingles are on my back & not my head or face.  I am really trying to be positive here.

Friday, November 27, 2009

Black Friday

For the past 9 years, I have worked on what the retail world calls "Black Friday."  I don't remember much except for all the chaos & crowds.  I don't know about you, but the simple thought of looking for parking makes me want to stay in bed all day & eat Thanksgiving leftovers. But, there are a lot of people out there looking for bargains.  And they are crazy enough to wake up at 3 in the morning to get a decent parking at the mall by 4:30 am because the mall opens at 5am.  That's power shopping to me...anyway, I think I am done with my Christmas shopping with only my immediate family to shop for.  Can you believe that I did the majority of my Christmas shopping online?  It was easy, quick, & painless.  And now, whenever I go to the mall, I don't have to think about gifts.  I can go shopping for ME!!!  I love shopping, especially when it's for me.  I know, I'm terrible, but at least I'm honest.  Thank God I don't have to work today!

Wednesday, November 25, 2009

I miss Texas....


Okay, so I miss Texas...weird!  I think I miss the shuttle & the ease of going to the doctor, I miss the "queen" treatment, I miss the doctor & her team,  & I miss the ono filipino food on the weekends at Aunty Sylvia's.  I don't miss being hospitalized, I don't miss missing my husband, & I don't miss the crazy drivers.  

I just recently had a"lightbulb" moment concerning my treatment & made an attempt to email the patient advocate at Queen's Medical Center.  I got the response I wanted & they promised that they will forward my email to the doctor, as well as partner with her to make sure my concerns are addressed & resolved.  Their only concern for me is that they hope I don't get treated differently by the doctor or her staff.  Gee, if that happens, the doc doesn't know who she's messing with & will be sorry.  My next appointment to see the doctor is on the 30th...I will let all of you know what happens, if anything.

My last treatment was on the 16th & usually for 10 days after that my taste buds disappear & I don't have much of an appetite.  I do eat though, but small portions & sometimes I skip a meal here & there.  It's hard to chew something that tastes like cardboard.  Also, my muscles ache, especially the ones in my legs, & my feet hurt.  My feet & hands are discolored, they're dry & sometimes they peel.  That's where "ped-egg" comes to the rescue.  If you haven't tried ped-egg yet, what are you waiting for, the thing works!  Anyway, I use cetaphil, bath & body sleep, or aloe vera lotion every night with socks to ease the dryness.

Anyway, my next treatment is on the 8th, & I've requested it to be at the Queen's Cancer Center rather than in her small, stuffy office.  Fingers crossed for a bigger, more private room & trained oncology nurses that don't make me bruise when drawing blood from my port.  Until then, thank you all for your kind words, prayers, & support. 

Saturday, November 14, 2009

Home Sweet Home...


We are finally home!!!  We arrived to Honolulu on November 6 at about 10 pm.  We had a long flight with 2 layovers in between & I think altogether we spent an entire 15 hours traveling...but it didn’t really matter, as long as we were coming home.  I’d like to thank all of you for your continued support, prayers, & goodies we received while we were on our journey in Texas.

The doctors in Texas are wonderful & extraordinary!  I definitely will miss the “queen” treatment I received while there.  Until you go, you will never know just how many people around the world that are affected by this disease.  It is shocking, but somewhat comforting to know that I am not alone.  And thanks to Kanoe’s outgoing personality, we have met many people that have touched our lives.

Anyway, I receive my first chemo treatment in Hawaii on November 16 at my doctor’s office.  I am praying that everything goes as smoothly as it did in Texas.  My doctor is smart though, so I’m sure there is nothing to worry about.

Ten things that I learned from my trip:  1) just when you think your situation is bad, God introduces you to someone who’s situation is worse, 2) just when you think you can’t take it any more, God picks you up & moves you forward, 3) there IS power in prayer, 4) patience, 5) I AM a lot like my mother, 6) my daughter IS extremely creative, smart, & talented, 7) my husband DOES love me, 8) there is more to life than just work, 9) despite the baldness, I am still beautiful, & lastly...10) there are so many wonderful people in this world.

So, yes...we are finally home & I am finally “back!”  I feel really good, strong, confident, & full of life.  This cancer doesn’t know who he’s messing with, but I guarantee he will regret messing with me!  Thank you all again for your prayers & support. 

Friday, October 30, 2009

CT Scans are not fun!!!

I most recently had a CT scan last Wednesday & it really sucked! First of all, the person who developed that "barium" should check theirself. Anything you do to that milky concoction is NOT gonna make it taste any better, in fact, I think the berry smoothie flavored barium still tastes pretty bad. What's worse, is that I had no idea there was such a thing as a "rectal" barium...yes, it is what you think...they put barium up there too. As if drinking three cups of that stuff isn't enough, they find a way to put it up there.

Okay, bitching aside, my test results came back with positive results. According to the doctor, there is no new growth. Which means that the chemo treatment is keeping the cancer at bay - YAY!!! And then, we were given the news we have been waiting so long to hear, the green light to go home - YAY!!! So, goodbye Texas....it was definitely a journey & well worth it, but get me the heck outta here & back to paradise where I belong.

So, yes...I'm going home! After a long two months. I'm going to continue my chemo treatments in Hawaii though, & I'll have another check up in another nine weeks. Thank you everyone for your continued prayers & support. You cannot imagine how much it's meant to me to know how many of you are praying for me & my family. The power of prayer - you just gotta believe.

Wednesday, October 14, 2009

Halfway to losing my mind...

I'm done with chemo #2 & am on my way actually to getting chemo #3. I guess I was so drugged out during chemo #1 that I don't remember any of the side effects. So, this time around, I really felt the side effects. It included nausea, itchiness, dizziness, the soles of my feet hurt, & loss of appetite. It lasted about 10 days! Can you imagine feeling sick for 10 days?
It wasn't fun at all, but as soon as it passed I was able to eat. Thank God!

Anyway, we've been here about a month & a half so far...& I am really looking forward to this week. Let's see, on Wednesday I have a bone scan, CT scan, & ultrasound scheduled with the results read the next day. This will determine when we'll be able to go home. I'm excited...cause I miss home, I miss my husband, I miss my own bed, I miss everything there is to miss about Hawaii. It's lonely & boring here in Texas especially when you rely on the hotel shuttle to take you places & the most exciting place it can take you is to Super Target. Thank God for weekends & thank God for my Aunty Sylvia & Uncle Greg. We spend our weekends at their house in Katy. Aunty takes us to the mall, to the grocery store, anywhere we want to go...& we're not confined to our hotel room.

H1N1 is a huge deal here & the hospital I go to just announced that they are not allowing children under the age of 12 on the premises. Which means that Kanoe can no longer come with me when I have doctor's appointments. I hope that this flu thing passes quickly. I just want to be able to go home & let Kanoe get her flu shots from her regular doctor. Here in Texas, we don't have a pediatrician & we have no way of getting around & I'm not familiar with what's nearby, so it would be hard for me to get a doctor for Kanoe. Anyone have any suggestions?

Monday, September 7, 2009

No More Fog...

It's been awhile, but boy am I glad that I'm finally out of the fog! By fog I mean, there are some parts of this trip that I don't remember because I was so doped up on morphine. I was hospitalized from the 8th thru the 16th. During that time, they discovered a bloodclot in my arm, got my pain under control, & even gave me my first round of chemo. I am so glad to be out of the hospital, the food was the worst. I did lose a lot of weight while in there, but I've been eating well, so I'm sure I gained some of it back. So, now I take methadone & neurontin for my pain & my mom gives me shots for the bloodclot. I am going to rehab also for the lymphedema, but my poor arm is so swollen & I really can't move it, plus we have to consider the bloodclot when exercising the arm - nothing too strenuous.

My next round of chemo is on the 1st. We're hoping that after this round, the doctor will be able to reassess me & tell us that the chemo is killing the cancer. when that happens, then we can coordinate with the Hawaii doctors so we can come home & I can receive treatment there. I miss home, I miss my husband, I miss Hawaii.

Thursday, September 3, 2009

Houston can you hear me?

We made it to Houston! Praise the Lord! Got to see the doctor today & had to do some tests - a bone scan, those are not too bad, but trying to keep still for 20 minutes. The doctor was very optimistic but also very blunt, which is completely fine with me. I mean ain't I the queen of bluntness? Anyway tomorrow is more tests - a CT scan & an ultrasound, I should be done by 12:30. I don't know, there's something about this place that I like. And it's not the guys!


Anyway, so I didn't get to finish the last blog cause I was just so irked from traveling. Today is no different. Woke up so darn early again so that we could catch a ride from my mom's friend to the hospital. Had some breakfast and then realized that I needed to no t eat anything for the test that they were administering to me that morning. I had a chest/abdomen/pelvis CT scan & later I had an ultrasound on the one I had removed.

Today I was a bit emotional, partly due to the pain in my arm. Gee, I'm hoping that someone on either end will find me a doctor that will prescribe me a sleeve. I don't know how much more I can take this pain, swelling, or the inability to do this blog thing with one normal hand & one "swollen" one.

Anyway, time for bed. I have a new mini net book, so mini that it's taking me so long to write this stupid sentence!

Sunday, August 16, 2009

Doctor's appointments - Boy am I sick of them!!!

Okay, so since Tuesday, I've been to a doctor's office at least once a day...& that's not it...I get to see my oncologist tomorrow, then the eye doctor & physical therapist on Tuesday, then the liver doctor & physical therapist on Wednesday.  Thursday & Friday are free for now, but we'll see if the docs decide that I need to see them again.

The new physical therapist is wonderful!  I've only seen her twice & already I'm noticing a difference in my arm.  She's also very informative as well & I've learned quite a bit in the last two visits.  I'm hoping to have a better range of motion before we go to Texas so that I won't seem so "handicapped."

My echo cardiogram came back with good news...my heart is in good shape!  Yay!  Thank You God!  But, it seems like the tumor in my armpit is pressing up against a vein in my arm & that is what is causing all this swelling.  So, we're being careful because we don't know if there is a blood clot involved, so when I exercise that arm, I have to do it lightly & not aggressively.  I find out tomorrow if they are going to put me on a low dose of coumadine - it's a blood thinner that will prevent my blood from clotting so that we don't have to worry about any blood clots forming in the arm.  It sucks!  I remember that my grandma was on that same medication.  Um hello?  When did I become my grandma?!!?  Okay, Grandma & Grandpa Cortez listen up... if you have any say or control on what happens to me down here on Earth, then I suggest you speak up & help me out here.  No more pressing on the vein, no more tumor in the armpit, full circulation returned to my arm, full range of motion returned to my arm, no more pain at all, no more cancer cells in my body!  And tell God that although I love being thin, this is not how I imagined it at all.  I pray that I am healthy thin, not sickly thin.  I guess you really have to be careful what you ask for in prayer & be very specific as well.

Anyway, I'll blog again sometime tomorrow with the results from my doctor's visits.  By the way, the Texas thing is coming along slowly.  I did speak with someone from the hospital, all my records are being faxed & copied, & all my scans are being put on a disc.  Hope it all falls into place soon, but only God knows the outcome of it.  I place it into Your hands Father & I stand upon Your word of healing.

Wednesday, August 12, 2009

Update!!!

Yesterday was the worst yet!  I spent almost an entire work day at the doctor's office - 9:30 to 4pm because I had been complaining of shortness of breath as well as not being able to eat anything.  I have no appetite, but I will eat if something is put in front of me.  For some reason, I had been having the feeling of fullness & was burping a lot.  They scheduled me for a CT scan to see if I had a blood clot in my lungs.  In order to do so, the tech needs to put an IV in so that they can put a contrast in your blood.  Little did I know that it would literally take them 3 times before I called it quits.  Not only was it painful, but they couldn't find the vein & when they found one, it wouldn't flush.  So, they sent me over to nuclear medicine for another type of scan.  It required an IV, but not as large & they were going to use my vein on my hand (which is the vein that everyone uses).  This time it took them 2 times to get the IV in & the first one hurt like a mother.  In fact it hurt so much, I think I heard him say that he "blew" the vein.  That's just great! Now, imagine, I had been at the doctor's office since 9:30 in the morning with only a granola bar in my stomach.  They are lucky that I wasn't starving, but I bet that's one of the reasons why my veins sucked that day.  I was dehydrated!  Hello!  Can anyone get me a drink? Anyway, the result from the test was negative - no blood clot!

So, I'm back at the hospital again today to do 2 things - a ultrasound on my arm & an echocardiogram.  They gave me some kind of results from the ultrasound, but I want to hear it from the doctor.  I think the tumor is pressing up on a vein.  I don't know what they do when that happens, but I'm sure I'll find out when I go to my follow up appointment.  I will publish the results then.

I just want to end with this.... Thank you God for my family!  Do you know that my grandma & grandpa live in town & they drove to Wahiawa to get me, take me to Queen's, & then take me back home.... and they will be back at 8:45 in the morning to do it all over again?!?  That's love. Thank you God for my family.  Don't worry, the rest of my family does amazing things for me as well.... it'll take too long to list them all.

Monday, August 10, 2009

A list of things that I am thankful for...

So, the other day I was at church listening to the pastor talk about "grace."  "Grace" is unmerited favor or something that you don't earn.  It is thru God's grace that we are forgiven, it is thru God's grace that we receive blessings.  I have learned that when you pray, you shouldn't pray about the things that are missing from your life, but rather, you should be thanking the Lord for what you have already received.  It is only thru being thankful in receiving that we can truly be given what we ask for in prayer.  So today of all days, I am going to list all the things I am thankful for to remind me how great & blessed my life really is.  And it's for you readers as well to remind me when I call you in despair.

I AM THANKFUL FOR...
my relationship with God
my healing
my life
my husband
my daughter
my health
my parents
my stepparents
my brothers & sisters
my aunties & uncles
my cousins
my inlaws
my car
my home
my bed
the furniture in my house
my friends
money
food, especially desserts :)
lavender body wash
hot bath water
big tubs
bubble baths
the feel of new carpet between your toes
the beach
the sun, the sand
shave ice
manis & pedis
my breath
sleep
pain meds
coffee & bagels w/cream cheese
hot, fresh malasadas
air conditioners
shopping
my cell phone
the internet
computers
reality tv
my doctors
hair
sunday services
gospel music
ipods

Thanks to all you PACSUNers out there!

Hey everyone, I just wanted to let you all know that I will truly miss working at PacSun.  I can honestly say that I have come a long way & I'm very proud of those that I have brought up along with me.  Good luck to all of you who remain on the team, I'm just sorry that I didn't get the chance to get to know all of you.  Thank you for all the support, all the talks, all the times when I needed to vent.  I will miss the meetings by the pool, the conference calls, the ops team conversations, picking up the outer island managers from the airport, the music, the dancing on top of the ladder, the team....I won't miss the floorsets, working on Black Friday, endless shipment, inventory.  Again, please feel free to keep in touch with me.  My email is hawngrl@hotmail.com.  Remember, work will always be there....make sure you make time to take care of yourself & spend it with the ones you love.

Saturday, August 8, 2009

Zometa Sucks & other Updates...

So, my first round of Zometa really sucked!  The IV went in fine & surprisingly it didn't take that long for the meds to go into me, but it was the side effects that I was totally unprepared for.  The next day I couldn't even get out of bed.  I was dizzy, my entire body ached (as if someone meat tenderized me), & I was extremely tired.  I remember drifting in & out of consciousness.  I felt like a zombie!  I couldn't really eat, I didn't really have an appetite, & food didn't taste as good. Side effects were very similar to receiving chemo, except I think they were worse.  The good thing that came out of all of this is that I managed to get a lot of sleep.  Last night I went to bed at about 9:30pm & didn't get up to take a pain pill until almost 6 in the morning.  Hallelujah!  Praise the Lord!

The doc put me on new pain meds, a patch, which I ended up removing after the first night because I couldn't breathe.  I felt like someone was sitting on my chest, I was hyperventilating, my heart was racing, & while taking a shower, I literally felt like I was drowning when I put my head under the water.  The next thing I know is I'm watching tv & a commercial comes on that says "if you know of someone who has died using the pain patch Fentanyl, they may be eligible to receive money from a lawsuit concerning the patch."  Okay, now that's alarming!  It's a good thing I called my doc when I did & it's also a good thing that she told me to remove it.   When there's a lawsuit going on that involves a specific medication, I think that all pharmacies should remove it & make it unavailable to the public until the lawsuit is resolved.  It's just wrong that I had to spend money to get meds that I can't even use!

Texas is where I think we're going...at least that's where the doc said we will be best served.  The center is called MD Anderson & according to their website, they are doing a lot of clinical trials on Triple Negative Cancer & getting positive results.  I'm not exactly thrilled about traveling that far away from home.  But I think we've made a decision to take Kanoe with us & let Deo remain on the home front to continue to work, make sure we have medical insurance, & pay the bills.  It's a lot to think about.  But I don't want Deo to lose his mind being a "single" father, especially because both my mom & I will not be around to help him.  Oh, & can I just talk about insecurities...I know I'll have them, but hopefully treatment will fly by & I'll be able to return to my husband quickly.  Just to let you know, sex is not an issue, meaning that we just don't have it anymore.  I know he loves me.  I know he's not getting it from anyone else.  I know that he's scared to touch me.  But sometimes, I wish he would just get over it & be intimate.  I just don't know how to make him see it my way.  Oh God, I really do need help! 

I'm fed up! Help me Lord!

I know that we all have our own ways of dealing with the obvious (me having cancer), but somehow, I don't believe that everyone sees it in the same light that I do.  I know that they will never understand it because they're not in the same situation as me, but I just wish some people really considered other people's feelings for a change.  

Okay, just to forewarn you, I am about to sound really selfish.  My husband is such a sweetheart, but at times I think he chooses to do things because he's afraid of what his friends might think.  I know, it sounds really high school, but it's the truth. I want him to spend time with me, find things that we enjoy doing together.  I know that it is also my job to find commonalities, but whenever I make suggestions, it doesn't sound much like he's interested.   And sometimes I find myself alone at home.  It's hard, I know he's dealing with a lot & I don't want to make nothing into an issue...but I guess I'm just scared that if I don't spend enough time with him, then I never will.  I guess you could say that I am preparing for the worst (I can hear all of you now wincing at my negativism).  It's there & no matter how hard I try to make it go away, it is a part of me, not a big part, but it does peak its ugly head out every so often.  

And can I just complain about his friends....they know nothing!  They cannot even fathom the severity of our situation!  And most times when they invite him out to do something, do they even think to think about me?  Do they even think that coming home at 10pm or midnight is an appropriate time to come home when you have a wife who is ill & a 3 year old very rambunctious little girl who can, at times, drive her mother absolutely crazy?  All they can do is take him "away" from the situation, but what happens when he comes home & is faced with the reality?  Don't get me wrong, I believe in "getting away," but that doesn't mean that it will get better.  I would rather his friends help him find ways to deal with the problems & help him find solutions.  Instead, they sugarcoat it with lots of neosporin & put a really pretty band aid on it & then leave it to me to rip it off.

I know, I sound bitter & I definitely don't sound like myself.  But this is what I've been feeling lately & I don't want to hide from my feelings anymore.  I want to face them head on so that I can beat them out of the way & move on to the next opportunity.  Don't get me wrong - I love my husband dearly & he has done a lot for me, more than I can have ever imagined.  So, I guess I should make a list of things my husband does for me without question & focus on the positives rather than the negatives because that will get me nowhere.  Thank you all for listening.  And just to let you know, as I'm writing my next blog entry, I am feeling bad about what I just wrote.  Forgive me for being selfish & jealous.  Please God make me more like You!